Wednesday 26 May 2021

Common Sense, Integrity and Passion For Service - Missing In Action?

We are so grateful to be home in our cosy and comfortable Station House. Gem performed above and beyond the call of duty, looking after our animals with diligence and affection. An overnight stay in hospital is bad enough; that we didn't have to worry about the menagerie reduced that anxiety. They welcomed us home with animated delight yesterday afternoon and Gem left to rejoin her little tribe at Windward Retreat.

The Mount Hospital reception area is rather sumptuous and gives a not-altogether realistic introduction to the rest of the facility. And Monday morning, the cold wind also permeated the waiting room with the constant movement of the self opening doors.

Six thirty cattle call is not fun. There always seems to be a great deal of waiting as the morning surgery list all congregate in the same space at the same time. Formal admission, delivery of any insurance excess and signing of forms depends on one's position on the list.  As Michael was first on Ben Kimberley's list, we were through admission and being escorted to Karri Ward by concierge Paul fairly promptly. 

We had been allocated a large shared room. The view was of the opposite side of the building and the carpark. The air-conditioning was vicious. At first glance, the room seemed in pretty good nick. We were visited by Evelyn, director of nursing, with whom I'd corresponded and met in 2020. I purred with satisfaction in response to her as I really hadn't had a chance to check out the facilities.

Being first on the morning list definitely has is advantages. We zoomed through the familiar process on the ward and I was still filling out paperwork when the orderly came to take him to pre-op.

Why do I go with Michael to pre-op? Does he want me there? From experience, I know waiting in pre-op bays to be isolating, sometimes scary and often cold. And yes, he wants me there. Michael dislikes the whole hospital experience so much that he tries to be invisible. He would rather shiver than ask for a warm blanket. He would rather wait for me to help him than ask for a nurse to get him a piddling bottle. He will wait until his pain is high, his nausea to the point of no return, his position in bed vastly uncomfortable before he asks for help. So, I act as his conduit.

Anaethetists, operating theatres nurses and surgeons or their assistants scurry in and out in pre-op. Most of the waiting is extremely boring. Eventually, I kissed Michael goodbye at eight thirty and headed out to Hudson's, the hospital café for breakfast. Toast and coffee consumed, I returned to Karri Ward. The time had come for a really good inspection of both the ward and the room holding beds 272 and 273.

Nothing could be done about the less than inspiring view. I ticked that off my list. The room appeared to have received a lick of new paint, but the shelving was somewhat scarred and daggy. The wardrobes were unloved and not easy to open and close and the bathroom door's bottom was showing serious signs of sustained bashings by wheelchairs and walkers. A baseplate on the bottom of the door could be the answer to repeated damage.

Worse still was the toilet. I had complained about the issues of blokes having to hold the toilet seat up a year ago. In another bathroom. Obviously, the engineering department considered this a Bridge Too Far to find a solution. Not God's sake, a clip to hold the seat and lid against the toilet would have done the trick. This may seem a trivial whinge, but Michael was initially unable to have a piddle standing up without me helping. There was no way he would have asked for assistance from the staff. He tried sitting down as well, which with two bandaged hands, this alternative was not ideal either.

The central air-conditioning continued to have a mind of its own. I spent most of our stay cold, whilst Michael was hot. Individual reverse cycle air-conditioners would make far more sense in two-bed rooms.

Then there was the absence of cotton blankets or a blanket warmer on the ward. I had also raised this issue a year ago, as frankly, the thin coverlets weren't up to the job, unless one could wear thermal undies all the time. I asked for blankets for him in pre-op and he arrived back on the ward with them post-op, but not having the capacity to obtain fresh blankets on the ward was poor management.

The promised microwave in the patients and visitors pantry was another unresolved issue. There is no option for heating of meals for patients and visitors. The old and tired line of health consequences was churned out. So, I asked if there was a microwave in the staff kitchen. Of course there was. At no point in my memories of the Mount has a staff member ever offered to heat up food for either of us using the staff microwave. That is not a request that should have to be made. Staff should ask their patients automatically as part of their duty of care.

Finally, communication had not overly improved. From the time of Michael admittance, I had asked for a script for his beta-blockers as we had no more repeats. I was reassured, repeatedly, that this task had been attended to. Come our discharge, no beta-blocker script had materialised. I had a minor tanty and flounced off the ward to get a hot drink from the cafe. Whilst away, I arranged Michael's follow-up appointment with the surgeon and picked up the referral to the OT. Upon my return, the script had turned up and been filled...Apparently, the anaethetist had phoned through the script but nobody was any the wiser, until I performed an impromptu and cranky song and dance routine.

Lack of both communication and the ability to think outside the square appear to be blighting our hospitals. I have been following the case of the seven-year-old who died in the Children's Hospital Emergency Department with sadness and disbelief. Communication and forethought seem to have been missing that night and I believe were as responsible for her death as the sepsis raging in her body.

A very long time ago, I undertook a year of nursing training before a car accident ended that career. I believe that a sound mixture of hospital experience as well as the theory is vital to create compassionate nurses with initiative. I don't think that balance is right. We need nurses to be proactive and really care about their patients without fear of favour. Only Thalia, his night nurse asked if he was comfortable in his bedding and altered the position of his blankets. She was, by a wide margin, the nurse with the most initiative during our stay. The other nurses' care could not be faulted but seemed to be following a tight script with no room for maneuvering.

And if nurses are not performing what I would view as their core tasks in relation to patients, then we all need to create enough noise for this system to be altered. Bedmaking, showering, toileting, watching for fever, wound care and drug management were drilled into student nurses back in the day. These should still be primary objectives of a nurse. We had a definite hierachy. Note making should be concise, accurate, with attention paid to patients' mental and emotional as well as physical care. Action should be immediate if any of these markers causes concern for either the patient, their family or staff.

May the gods who run our hospitals recognise these important issues so fewer people die unnecessarily. May the powers that be recognise why nurses are so vital on the coalface. Doctors are also responsible for miracles as well, but the nurses are the lifeblood of our wards. May they be treated as such and encouraged towards excellence.

We need a system that is not a lottery, but offers common sense, integrity and a passion for service from every single staff member, from the tea attendants to the specialists, but particularly in our nurses.


Programme on display in room next to the patient's whiteboard


Clinical Bedside Handover 
The implementation of bedside handover is a part of the eight (8) National Safety and Quality in Health Service (NSQHS) Standards, which measure overall performance of hospitals. Bedside handover will improve communication between patients and staff, ensure patients/consumer participation and allow the patient to be at the centre of all discussion surrounding their care. Bedside clinical handover is the sharing of clinical information about you, between your treating nurses and you. Performing handover at your bedside allows the nurses to be introduced to you and allows for exchange of information that ensures continuity in your care. The nurses will review your medical charts together and check any infusions or drains that you may have. You will be able to comment on the information discussed. We aim to perform handover during nonvisiting hours. When this is not possible your visitors will be asked to leave the room whilst personal information about you is discussed. Parents, carers and family members can stay during your handover. 

NOT DONE ONCE

Discharge Information -

It is important to us that your discharge from Mount Hospital is as smooth as possible. The following information has been provided to assist you in planning your discharge with the nurse caring for you. Questions you may wish to ask when planning your discharge with your nurse: • What is my expected discharge date and time? • When can I make arrangements for collection/discharge? • What medications will I be taking home? • Do I need a medication list? • How do I care for my wound? • What do I do if the dressing gets wet? • Do I need to obtain extra dressings? • Do I need to make an appointment with my specialist? • When do I make an appointment to see the GP? • Do I need to take my nursing discharge summary with me? • Do I need any equipment to use at home? Discharge Time To help us to prepare rooms to the same standard that you enjoyed upon arrival, we kindly ask that you depart from your room by 10.00am on your day of discharge. If your transport home has not arrived by 10.00am, please discuss this with your nurse. If you require assistance with luggage or transferring to reception, please do not hesitate to ask your nurse or ward clerk. Should you have any queries or concerns after you have been discharged, you are welcome to contact us on (08) 9327 1100 and ask to be transferred to the ward you were on. 

GIVEN VERY BASIC DISCHARGE SUMMARY. We have never been discharged by 10 am ever.


Afternoon following surgery


Feeling better...





Ready for his shower...


MacGyver tying his shoe laces with two bandaged hands...


This morning, with Suey...


 




Monday 24 May 2021

Despite The Wintry Day, Our Mood Has Lifted...



A cold and bleak late afternoon in the Big Smoke. We are comfortably resting inside a shared room at the Mount Hospital. Earlier, the air-conditioning was a tad on the cool side, but some engineering boffin has raised the temperature and now the space is nicely warmed. 

We left Heavenly Beverley in the pitch dark over twelve hours ago. After a consultation with the Boy Wonder last Wednesday, we decided to bite the bullet and subject Michael to a third operation on his troublesome right wrist. This was today's mission, hence the early start as we had to be present for cattle call at six thirty this morning. The trip took all my concentration, however we saw no kangaroos or other stray animals, much to our relief.

The good news was that Michael was first on Ben Kimberley's list, so I kissed him goodbye at eight thirty and immediately segued to breakfast at the hospital café. The wait until he returned was tedious and boring, but I was able to keep track of his progress in theatre and thence into recovery. He was eventually delivered back with both arms bandaged about eleven fifteen.

The left ring finger has been untriggered and the screws removed for his right wrist, along with some more chiselling of his troublesome ulna. We are hopeful that once the initial post-operative pain lessens, he will finally be able to use his right arm with more purpose and less discomfort. That is the plan anyway...

I hadn't realised quite how stressed we'd become during the last four days. At least we didn't have to prolong the agony. A cancellation made Michael's sojourn into theatre possible and I also thank the universe for our private health insurance that means we never have to wait on the public list. 

Even  so, hospitals are not our favourite places and we are always nervous ever since a so-called specialist nearly killed Michael back in April 2014. But, due to my "Pollyanna" tendencies to focus on the positive, Michael's horrendous lung abscess was subsequently treated by Scott Claxton, who remains Michael's respiratory specialist and has just taken on Alex as a patient. I wonder if we qualify as "repeat offenders" for Scott's care.

We have left the dogs and kittens in the tender ministrations of Gem and Adam, also known as Mister and Missus Meataxe and who have a fetish for their festy Festiva off road racecar. These two thirty somethings are in the process of moving permanently into a little cottage in Beverley named Windward Retreat, along with their cats Boofhead and Ranga. They kindly volunteered to leave their cats to their own devices at their cottage to look after our menagerie for the night. Ranga is, naturally, a pretty ginger cat whereas Boof closely resembles Adam with a shock of black fur and a physique similar to a Sherman tank. We are very grateful to Gem and Adam and also wish to thank their cats for lending us their parents for tonight.

If Michael's recovery is routine, we will then look forward to hosting our winter Sundowner at the East End Gallery on Saturday 5 June. For no particular reason, we have decided on a pirate theme and expect plenty of wooden legs, parrots, blackened teeth, corsets and piratey costumes with more than a few "AARGHs" as the evening progresses. If you are coming, the theme is voluntary and please bring a plate and bottle to share. East End Musos - best Jack Sparrow impersonations...This Sundowner promises to be a ripper.

Following our Sundowner, we will then have a month to get Digger the caravan shipshape before we head off for the wilds of the Deep North. We hope to get as far as the De Grey River, after spending my sixtieth birthday in Onslow. Then we intend to fossick our way southwards in due course, including a reasonable length of stay at Marble Bar. We look forward to meeting kindred spirits along the way. Those of us who are thrilled by the outback Pilbara, Gascoyne, Murchison and Mid West are an unusual breed. We tend to develop maniacal gleams in our eyes discussing our fossicking and are often overcome with joy by the sight of yet another old tip...

A quarter past six and now black outside once more. Each passing minute brings us closer to going home tomorrow. Dinner has come and gone in that unique hospital timetable. All going well, the Beverley Hillbillies are looking ahead for our next adventure.


Michael post-op today - 24 May 2021


Feeling better...


And better...


And better...


Working on his Instagram research...





Adam and Gem on their wedding day...


At a Sundowner...


Ranga and Boofhead...


Michael on the Barbie April 2021


The Beverley Hillbillies...


Michelle and Michael at our last Sundowner...


Fossicking 101...


Marble Bar fossicking...


Stella on the beach at Onslow...

Sunday 23 May 2021

A Quiet Moment...

The rain is pouring down. We will have some happy farmers who are cropping, less joy for those farmers who run sheep and having lambs being born during this wet and windy weather. An elderly codger from York once told Michael that the winter rains didn't really kick off until 22 May. Given the pelting we are receiving this evening, I think he may be correct.

I am drawing breath after a busy four days in the East End Gallery. We have had some fabulous guests and wonderful sales. Ian Kay's "Bush Spirit" - a gorgeous combination of metal and wood fashioned into a plane sold today, as did Andrew Taylor's "Mirror". I am really delighted for Andrew and Laura as they lost all their possessions and their house in the Tilden Park fires. Newish Gallery artist Jane Button has a secret lover who bought the second piece of her work today. Jo Nelson from Muchea and Beverley V from Beverley have also had their wares go to new homes. Congratulations to this weekend's successful artists and the Gallery's receptive guests.

Michael and I celebrated our twelfth anniversary yesterday with a celebratory dinner at the top pub. One lonely widower and one energetic divorcee met at the Whiteman Park dog exercise area for our first "date". As the dogs galloped around us, we talked, surprisingly quietly for me. Michael didn't touch me; didn't try to kiss me; didn't intrude on my personal space at all. I was smitten.

We took our relationship a step further five days later when Michael asked me if he could drop in for a vino after visiting his Mum in hospital. He had to run the gauntlet of my protective friends and passed with flying colours. We haven't looked back since.

Tomorrow morning, we will travel to Perth, leaving Heavenly Beverley at the ungodly hour of 4.45. In the early morning. Michael is booked for surgery again, and as he is on the morning list, we have to arrive at the hospital at 6.30 for the cattle call.

Michael's ulna will be shortened again and the screws removed from his right wrist. Plus, Michal's left ring finger has to be untriggered; this has been a painful and irksome issue that has impacted his functioning. We are overnight at the Mount Hospital, with me boarding. I am looking forward to viewing the improvements that were promised by the Director of Nursing after Michael's first operation in 2020. I am hopeful I will not be disappointed.

We also welcomed friends John and Lorraine, and  Peter and Ann, all from suburban Perth and former Artists in Residence at the Station Gallery. Deb Robins from Busselton, who was born in Beverley, swapped some of her lovely little oils around, as did Jenny Couper. Come and check out our new artists and art pieces when you come to Beverley soon.

Dinner is almost ready in the oven, the cats are sitting quietly on the table and the dogs are in a frenzy of play. All is well in our world.

Stay tuned for updates of Michael's surgery...




























































Saturday 22 May 2021

A Trip Down Memory Lane To Go Back To The Future...

May has not been a particularly quiet or restful month. There have been notable exceptions, of course. On the afternoon of Friday 14th, I marooned Michael at home, hopped into Lily and took off for the wilds of Pinjarra. I was reunited with nearly twenty wonderful women, some of whom I hadn't clapped eyes upon for nearly ten years. We spent over forty fabulous hours together, which was definitely well worth the effort of actually getting away. And Michael ran the East End Gallery so efficiently that I intend to return for another retreat in November.

I did have an important purpose for this adventure. Alex's smooth transition of his disability funding into the NDIS (National Disability Insurance Scheme) has hit a snag. Due to the expansion of his lung condition, which involves a productive cough and trialling some new therapies, he is in need of a reverse cycle airconditioner in order to keep an even temperature in his unit and hopefully reduce his asthma symptoms. 

So, I set out to divert some of Alex's funding for this purpose. That's when the sticky brown stuff hit the fan. Any payment of his funding must be linked to his daily functionality. The NDIA (National Disability Insurance Agency) argues that Alex's need for an airconditioner is a health matter, which they don't fund. I have responded that Alex's daily functioning would be up Shit Creek if he doesn't have access to stable temperatures in his unit. Thus, we are currently engaged in a groundhog day of stalemate as each of us attempts to refute the other's reasoning.

At the retreat, I picked the superior brains of those fabulous women who had actually made sense of the NDIS and made the scheme work for them. I admitted that I really had no clue of the machinations of the NDIS, which was why I'd ended up in such a pickle. 

On a steep learning curve last weekend and subsequently, I have understood that reports from highly qualified health and para-health professionals are the way to move forward. I have only been Alex's mother - what the hell would I know, given my testimony could not be taken seriously, even though I'd parented him for the last thirty years. I was not an independent professional paid to taken observations and record the findings.

Which is where the NDIA's logic is all wrong. They are determined to keep us money-grabbing families from selfishly requesting funding to make our lives and those we support a tad easier. The NDIA would have us believe that if they agree to all our demands, the country would go bankrupt and all disabled people would be swimming in unnecessary luxury. They forget the overwhelmingly important point - the world is not a level playing field and people with disabilities are at a disadvantage from the beginning. 

My son has a congenital heart defect that can't be "cured", asthma that has to be controlled by medication, a still unknown ongoing inflammation of some sort in his lungs, low right-sided muscle tone that I believe was caused by a stroke during one of his surgeries, heart arrhythmias that mimic a heart attack, ongoing issues with his ear canals and susceptibility to upper respiratory and chest infections. Just to make his life really special, he struggles with language and has an intellectual deficit.

So, no, I don't want Alex to have an unfair advantage. All I want for him, at present, is the means to keep the temperature of his unit stable to help prevent his asthma from being triggered, which heightens his risk of developing an infection of his airways. Which sure as shit cramps his style, his ability to work as a café attendant and substantially affects his daily functionality.

I have also discovered, with Mizz Stacey Marasco's able assistance, that Alex is meant to have a yearly functional capacity assessment as part of his core funding. To my knowledge, that has not happened for at least the last two years and was not brought to my attention by the Local Area Coordinator, who wrote his NDIS plan.

Needless to say, I have asked for a change of Local Area Coordinator...

I am now attempting to find an Occupational Therapist in Perth not run off their feet who can perform a functional capacity assessment as soon as possible. I might as well be asking for the winning Lotto numbers. Wish me luck...

And we need a specialist letter from Doctor Scott Claxton, detailing how Alex's lungs affect his daily functionality. Whew...

At least I have begun to get my head around how the NDIS operates. And knowledge equals power.

Many thanks to Stacey, Ailsa, Laura, Sue and everybody else who put up with my whinging, snoring and gasbagging well into the evenings.

That was my first venture into my past to bring me up to date with the present and future. As I drove home via some very picturesque villages, I was reminded of my first trip away with Michael in 2009. Eager to impress me, we visited such beauty spots as Boddington Alumina Mine, Griffin Coal and Worsley Refinery as part of a routine Sales and Services trip. In spite of the unpleasantness of some pretty wiffy places, I was fascinated by Michael's energy, problem solving and logic as applied to his work. Which he practised up until the day he was forced to retire.

What of the rest of May? I was inundated with medical appointments, including my own. First I discovered that I was a most uninteresting middle-aged fat woman with no distinguishing heart abnormalities at all. Bron and Immy met us at Joondalup whilst with Alex to deliver my new computer with all data downloaded. Then to Scott Claxton with Alex, which was a most thorough appointment. Latest was Michael's rendezvous with the Boy Wonder. Due to the ongoing dissatisfaction with the last operation, Michael is going back under the knife for the third time on Monday for his troublesome ulna and wrist. All he wants is to be able to continue with his artwork for another ten years. 

And today is our anniversary. We met, twelve years ago, at the Whiteman Park dog exercise area to see if our dogs could get along. They did and so did we. The rest is history. Ten years ago, we were lucky enough to move to Heavenly Beverley. And now, we inhabit Station House with all our possessions and treasures around us.

I am currently just looking towards Monday and Michael's next surgery. We wish for his speedy recovery. We return with Alex to see Scott Claxton earlyish in June. I shall continue to engage with the NDIA until I procure the funding for Alex's airconditioner. And then we are looking forward to our next trip northwards in July to leave the cold weather behind for about six weeks.

This update has been almost two weeks inside my head. That will do for now, I think.


Bron with Immy at the Coffee Club, Joondalup 10 May 2021


Immy...


Proud Uncle Alex with Miss Imogen


Grampy and Immy


Pondering life, the universe and everything - Zelda, Laura and Stacey...


Laura with her Alley Katz...


Ailsa and Laura



On the way home Sunday 16 May - at Quindanning...







Kate and Michael - Sales and Service trip June 2009


Kate and Michael - with Imogen Ivy 14 April 2021