Thursday, 5 May 2016

I'm Dancing as Fast as I can.

Thursday night. I should be on top of my game. Yesterday, Michael managed to stay out of hospital by receiving his antibiotic IV infusion with the fabulous Doctor Susie Stevenson in York. He sees her again tomorrow for another infusion and a check-up. She is the only GP we have encountered who has ever suggested an alternative to oral antibiotics for Michael out of hospital.  So, she has become our go to doctor of choice. Thank you, Susie.

Then why do I feel like I have been run over by a truck? I am tired all the time. I understand stress. My job is to have a lot on my plate. I have a beloved husband with chronic health conditions to keep me on my toes, particularly during the cooler months.

Alex is facing unemployment if the Swan Friendship Cafe, Midland closes. Our autistic superstar lives for a career in a kitchen. Since he left school in 2009, he has attended and successfully completed two hospitality courses, had countless tryouts, a few short term contracts and endless trotting to his three separate disability employment support agencies. The Swan Friendship Cafe is his key to self-worth, self-esteem and self-love. This is the place Alex feels confident and competent. And without funding, by 20 May, for this worthwhile enterprise, his world will fall apart.

So I've started a petition on Change.org - "Save the Swan Friendship Cafe". I've participated in a radio interview. I've written to politicians. I have posted updates on Facebook. I will walk naked down the main street of Beverley if the Swan Friendship Cafe closes. I have promised Alex.

Vanessa's path through her Masters is a rollercoaster of calm and chaos. She is so awesome when in control, so frenetic when under the pump. She adores us both but needs our unconditional support at times. Which is easy to give when we are relaxed, not so easy if we are dealing with our own issues.

Cal has just changed jobs. He is now working as a duty manager at a busy hotel. This is the job he has been waiting for. He is challenged, busy and completely overwhelmed at present. He will get there as he's smart, efficient and energetic. But I worry about him.

Then there was the visit from the Ranger. Somebody locally has complained that our dogs bark at night. Except they haven't barked since 27 April. And they know us well, apparently. So how does the complainant know our dogs are causing the disturbance. We are surrounded by dogs. They all bark day and night. One starts and the rest follow. and we have had a lot of foxes around lately. Which the dogs hear and respond to their presence. When I suggested to the Ranger that foxes were the root of the problem, he told us to set traps. Which would not be on our property. The Ranger was there to snoop. He asked about our dogs' registrations. They are all registered. Were three dogs approved by council? We had no idea. Not good enough. He asked about the dogs' microchipping. I wrote a letter to the shire explaining we I wanted to exempt two of our dogs. One is Sascha, an elderly Weimaraner. The other is Pip, a rescue dog who was totally traumatised as a pup and does not cope with being handled by unfamiliar people. We never received acknowledgement of these letters so I forgot about the issue. Not good enough, according to the Ranger. He  entered our house in order to entrap us. Simple as that.

We feel violated. I was really upset. I hope the person who made the complaint is delighted with the outcome. The Ranger had no idea of people skills. After his visit, we went for a gentle walk. Helped. Then onto the doctor's visit. Home after five.

I had huge trouble waking up this morning. Michael wanted to work on "The Black Dog is Back", so he opened the Gallery for me. I arrived at noon. All afternoon, I was waiting to be exhilarated as I usually am at the East End Gallery.

Not today. I am just tired. Hopefully, tomorrow will be a new, better day.







Wednesday, 4 May 2016

Saved From The Big Smoke.

Michael has been unwell, on and off, for the last six weeks. This has been concerning. We both know he is susceptible to chest infections when the cooler weather sets in. Except this year, bronchitis began in March. Not a good omen.

The really good news is that the node in Michael's right lung is not increasing in size, In fact, it may be getting a tad smaller. Which means it is not a tumour. To learn this was like removing a huge weight off our chests.

However, he still has emphysema and asthma and structural lung damage. Bummer. And this autumn has shuddered from very warm to quite cool. We went from wearing shorts and tee shirts to jeans and jumpers in a matter of days. This has not been conducive to Michael's well-being.

Until today, he'd had four courses of oral antibiotics in six weeks. Which was spasmodic in benefit. He was still having sweats and fatigue and generally feeling lousy. When we set out for his appointment at the York GPs this afternoon, I was sure we would be sent to Perth.

We have been Doctor Susie at York on a few occasions. This time, she proved herself to be phenomenal. We will never see another GP in York apart from her if we can help it. She was switched on, progressive, gentle and quick. Switched on - she diagnosed Michael immediately. Progressive -she offered us an IV infusion of antibiotics for Michael. Gentle - she administered Michael's antibiotic infusion with comfort and skill. Quick - I have never, ever had a better Fluvax injection than the one she gave me this afternoon. And she burnt a skin cancer off my hand as efficiently as possible.

She saved us from a trip to hospital and the Big Smoke. She recognised Michael's illness, chose a less than conservative treatment and set up follow-up appointments.

Doctor Susie is our saviour tonight. Michael has had an IV antibiotic and started on prednisolone. He sees Susie again on Friday for another infusion. This is amazing - the difference between feeling in control of Michael's condition or not.

I shall sleep well tonight.


Our heroine - Doctor Susie...


Michael unwell in hospital...


or Michael unwell at home...hmmm I think he looks more comfortable at home!





Monday, 2 May 2016

The Black Dog.

"The Black Dog Is Back". Sculpture in copper and mild steel by Michael Sofoulis, metal artist. A work in progress. Comments welcomed.






Surviving the Sofoulis Soiree...

I have been mysteriously missing in action for the last few days. All can now be revealed. Michael and I have been attendees at a weekend mass gathering of the Sofoulis family. and we have both lived to tell the tale.

Blast off was Friday. I had hoped to open the East End Gallery for a few hours both on Friday and Sunday. Unfortunately, the organisation of forty-eight hours away from home caused a production line of packing, cleaning the kitchen for our French backpackers and the ever-faithful Ryan, giving instructions on when, where and how to feed the Three Stooges, topping up Madame Cat's biscuit and the Pirate Parrot's seed and the actual travelling time torpedoed any chance of opening the Gallery.

If we caused disruption to your plans to visit the Gallery, I apologise profusely. We will be open with bells and whistles from Thursday as per usual.

And Michael was causing me concern. His flushing, sweating and restless sleep had returned last week. I debated trying to squeeze a doctor's appointment into the mix. In the end, I just started him on antibiotics. Tomorrow, we see the quack for a check-up of his chest and see if he can have his annual flu injection.

We set out at two o'clock in the afternoon. Destination - Ledge Point. Accommodation - a house with cousins Zoe, Faye and Penny, Party Central - Nic and Sue Sofoulis' home on the beach.

The journey was long and rather tedious. We stopped for emergency medicinal supplies of vino in Midland. Then Perth traffic made mayhem for another hour. Finally clear of the Big Smoke, we motored along in the evening gloom for another hour. We were relieved just to arrive in one piece.

Our accommodation was utterly delightful. A modernised house and we had our own room and en suite. Nobody bothered with the living room, except Zoe's godson Henry, who was trying to catch forty winks. We all congregated around the dining table which was big enough to sit six with ease and eight if necessary. There was also a huge outdoor area with glass table and multiple chairs.

Not that we were in the house for very long. Enough time to unpack and have a drink and unwind. Then it was off to the Ledge Point Country Club for dinner and First Encounter of the Weekend with the Family.

Any anxiety I had ebbed away as the evening was an absolute blast of very good food, plenty of laughter and animated chatter amongst us all. Some of the cousins, including Michael and Sue, reminisced about previous family gatherings.

The common themes caused great amusement. At a previous weekend in 1974, all the current fifty and sixty somethings had been teenagers or young adults. Staying up all night, sleeping in panel vans and long hair on both the boys and the girls were exhibited for all to see in a hilarious photo album. Later events, when most of the family had become model citizens, were also on display.

Then there was the memorable party at the House that Rocks when Michael was in hospital with pneumonia and I had to run the show without him. At that time, my children, cousin Zoe and sister-in-law Sandra had saved the day. That gathering passed in a whirling dervish of little sleep, minimal preparation and maximum panic. I am pretty sure everyone had a good time....

We returned to our house fairly early. We were both tired. The internet was fading in and out, so I gave up trying to go online. We had a glass of vino and went to bed. An auspicious start.

Saturday morning dawned. There was mass activity in our kitchen. Michael had not had a great night, so I left him sleeping and went to join the flurry. Penny and Faye were in the process of preparing enough food for the Five Thousand. Entire benches were being utilised for this process. There was a minor disaster when one of the door shelves of the fridge gave way. However nothing was spilt and we discovered that particular shelf had been previously glued by Someone Else.

The internet was still unreliable, so after a brief struggle, I gave up. I did run our slideshow of the history of our building and the East End Gallery. Apart from producing exclamations of horror and wonder at the Forbes building's original condition and what we had achieved, sharing these photos was a feel-good exercise for us, finally having reached our goal after all the hard slog.

The party launch and Second Encounter was from eleven. Naturally we arrived at noon. The roar could be heard from the street. The afternoon was a huge success. Four generations of  the Sofoulis family were present and enjoying the day at full throttle. The amount of food was truly mammoth, the tables groaning under the weight. Nic, our genial and unflappable host, was in charge of barbecuing crayfish and just about every other savoury morsel of chicken and meat on the planet. Now a very successful crayfisherman, he had been a teacher in a past life.

The afternoon was filled with episodes that will remain with me forever. Grandchildren careering all over the house. The front door handle coming off in my hand - apparently a frequent occurrence. A junior member of the family hurling the same handle from the upstairs balcony, fortunately missing all heads below. Two of the younger set periodically popping in drenched from the outside shower. A dog named Ronnie confined to one of the bedrooms, making a huge fuss of me when I attempted to find the loo. Ronnie later hurtling amongst the family, barking from the balcony at passers-by. The third generation making themselves at home on their own private landing, gearing up for an action-packed night at another venue.

The vino flowed and the noise of chat and laughter increased. At some stage during the day, some very talented members of the family added a guitar and singing to the equation. We were also informed of the progress of a book on the family and I remembered I still had to write a biography of my father-in-law Lucky. I promised Faye I'd e-mail that information to her this week.

Michael's anxiety ebbed and flowed. Occasions such as this were bound to raise memories for him. Every now and then, we would scuttle to the sanctuary of an outside courtyard - the designated smoking area - meet other escapees and have a break from the crush and the noise. During one of these sessions, we caught up with Sue, Nic's wife and their daughters - all smokers.Sue and Michael remembered a party when they had sat up behind the original Ledge Point house all night. Sue had been unfortunately woken by her then small children about an hour later. That morning had been seared in her memory forever as not a well thought-out plan.

Michael wasn't the only guest with anxiety issues. Some of his fellow sufferers were plain to see in their discomfort. Others came out of the woodwork over that afternoon and the following morning. The mix of emotional responses would have been at home in any tragi-comedy.

Michael coped by unwinding with vino, food and the occasional flee to freedom. By mid-afternoon, he announced he was having a great time and became more gregarious in his mixing with the family. I was relieved to see him so relaxed as Judy's funeral and wake (Michael's Mum) had been fraught with emotional unease for him. His confidence was restored.

By six o'clock, I knew he needed to retire for the night. Sue and I herded him down the stairs into the great outdoors. I loaded him into the car and took him back to our digs. He'd drunk too much and smoked too much, but to see a gleefully mischievous glint in his eyes was worth any potential after effects.

He slept, more or less, for fourteen hours straight. He was unaware of his restlessness and dreams during the early part of the night. I knew from past experience he was processing the day's events. Later, his breathing became much deeper and regular. Then I was able to switch off and join him in Cloud Cookoo Land. And, extraordinarily, he woke with no nasty symptoms whatsoever.

The same could not be said for some of the third generation. A night of games, dancing on tables, lots of music and singing and a colander on at least one head had resulted in some very unwell bodies the next morning. I dispensed anti-nausea medication to one of the girls, whose face said it all and was hoping to write a two thousand word uni essay that afternoon. Been there, done that - not fun anymore. For us, hangovers now tend to be truly awful and take at least two days to recover from the unpleasant effects. Unlike the young, we do not bounce back well.

Sunday breakfast was the last hurrah of the celebratory weekend. Once more our kitchen became an assembly line of eggs, tomatoes, mushrooms, baked beans and toast. Michael was in charge of the BBQ, frying a colossal pack of bacon, mushrooms and tomatoes. Even so, we only just had enough to feed the twelve or so around the table.

We packed up, finished weekend long conversations and participated in extremely lengthy farewells. Not that we were finished with Ledge Point yet. We'd left our esky at Nic and Sue's. Eventually, after twelve, we left the coast and turned Goldie in the direction of home.

The weekend was a stupendous success. Few injuries apart from hangovers, a chance to see far-flung relatives and experience some amazing Greek hospitality. And learn the Greek spelling of Sofoulis. That was quite special - Σοφουλισ  (this is not quite the same as "Sofoulis" was written on our name tags but I did Google how to write Greek!)

Now I really feel part of this astonishing family.

Fortunately, we have seven or so months to recover before Lucky's 90th birthday in December. Now, that promises to be another fabulous Sofoulis soiree.


Two Michaels...


Two patriarchs...


Wives, cousins, aunts...


even one escapee on day pass from hospital...


brothers and cousins...


three Michaels!


three Michaels plus brothers and cousins...


same mob, different pose...


some of us girls...


and again...


and again...


cousins...


photos being taken of photos being taken...


my beloved Michael and some random fat woman...


and finally, Sue in her kitchen with some of the wreckage!













Thursday, 28 April 2016

Creating a Great Fire Grate...

I have spoken quite a bit lately of Michael's creativity lighting up like a fire. Probably just as well as the cooler weather has started with a vengeance. Goodbye to shorts and tee shirts. Hello to jeans, trackie daks and windcheaters. We've had to dig out our woolly ugg boots, flannelette shirts and waterproof coats We've lit the Kent tile fire at the House that Rocks for the last two or three days. Michael's next task was to construct a fire grate for our open fire in the East End Gallery.

Like everything Michael does, this is custom made. When he told me he was going to make a fire grate, my response was "that's nice, dear" and promptly forgot about his latest project. One of my deficits is a complete lack of visualisation. Whenever Michael has tried to explain how a sculpture or the flashing around the window or the brick hearth would appear, I would have no idea of the finished result.  Which is quite satisfying in a way, as I am then ultra impressed at his efforts.

On Monday, the Anzac Day public holiday, there was an extraordinary cacophony of sound exiting Michael's workshop. He was at his imaginative best. Many, many years ago, making fire grates were part of his steel fabrication agenda. Fast forward about thirty years and he hadn't forgotten. A quick drawing and he was off and racing. All day.

There is now an 850 millimetres, beautifully simple fire grate installed into the fireplace at the Gallery. This is not a fire grate that will fall apart or melt after a few outings. Made from steel rods, this lovely firegrate will hold its own and provide us with a solid base for our logs.

Now all Michael has to do is make the accompanying mesh fire screen and our fireplace will be ready for blast-off at the East End Gallery.

Watch this space.







Custom made fire screen @ the East End Gallery.




Wednesday, 27 April 2016

Save the Swan Friendship Cafe!

The Swan Friendship Café has been a landmark in providing homemade food for its loyal patrons over the past ten (10) years. Operated by Ms. Maria Sorgiovanni and the Board of the Swan Friendship Club of WA Inc., the café has provided employment and training to young adults with disabilities. The Swan Friendship Café is situated in Centrepoint Shopping Centre, Midland, Western Australia. The Cafe is on Facebook.
My son, Alex Hawes, has been one of the young adults benefitting from meaningful and paid employment at the Café. Alex was born with Tricuspid Atresia (a congenital heart defect) and developed Autism, Asthma, Intellectual Disability and Low Muscle Tone. As a chronically unemployed young man since he left school in 2009, the Café has provided Alex with a niche where he feels proud, useful and valued. In short, he loves his job at the Swan Friendship Café.
Unbelievably, the Café has never received any funding from government. Politicians have visited the Café, offered empty promises and scuttled away. The Swan Friendship Café will close as of Friday 20 May 2016 unless significant and recurrent funding of $100,000 per annum is secured by this date.
Please sign this petition (through Change.org) to save the jobs of my son and the other young people employed by the Swan Friendship Café. I have addressed the petition to Mr. Christian Porter, Federal Minister for Social Services as I have no faith in the current state government here in Western Australia. 
I would plead with Mr. Porter to make an urgent visit to the Café, which falls in his electorate. These young people are not a burden; they just want to keep working at the Swan Friendship Café. Mr. Porter, please make this happen.


Our autistic superstar relaxing in Heavenly Beverley..


Man about town at the BeFriend Ball...


With good friend Adrienne at the BeFriend Ball...


and with best mate from primary school, Chris at the BeFriend Ball.


Monday, 25 April 2016

Welcoming Our 36th Artist

At the close of an already extraordinary day, we received another windfall. We have taken delivery of a 2.4 metre restored and distressed sideboard with a stunning solid jarrah top. The artist, an absolutely lovely chap named Steve Adams, is an old friend of our mate and international man of mystery, Guy Slingerland.

Steve has not had an easy time of life recently. All the usual hassles that can hit any one of us without warning and can threaten our livelihood, our health and our self-belief. Steve is working very hard to get back on track and has produced a piece of furniture of great beauty for us to have in the East End Gallery.

Steve is definitely not an artist who blows his own trumpet. I know he has produced furniture for "Empire" in Subiaco and will take commissions for bespoke items. I also know, that as a lover of Weimaraners, he has to be one of the "good guys"...

In the meantime, come and view his latest piece in our Gallery. Steve Adams deserves this fresh start.


The artist...


and his finished sideboard, available now in the East End Gallery